Patient Advocacy Organization (PAO) Action Week encourages you to actively engage with a patient advocacy organization that is relevant or meaningful to you.
Help spread the word about a PAO that matters to you using the hashtag:
#paoactionweek
June 10-14, 2024
Patient Advocacy Organization (PAO) Action Week encourages you to actively engage with a patient advocacy organization that is relevant or meaningful to you.
Help spread the word about a PAO that matters to you using the hashtag:
#paoactionweek
Patient Advocacy Organization (PAO) Action Week encourages you to actively engage with a patient advocacy organization that is relevant or meaningful to you.
Help spread the word about a PAO that matters to you using the hashtag:
#paoactionweek
PAO Action Week recognizes the contributions of these patient-focused entities that provide support for patients and their caregivers, advocate for patient needs, support research, lobby for patient access, and increase community awareness and understanding.
1. Source: Centers for Disease Control and Prevention, Accessed April 5, 2024
There are more than 1,200 patient advocacy organizations within the United States, and each is unique in its offerings.
Some PAOs are national or regional organizations and others are locally-focused.
Some PAOs are focused on only one disease state while others represent multiple disease states.
Some PAOs provide patient educational resources while others are dedicated to raising funds for research.
Some are focused on rare diseases and others support patients with more common illnesses.
Most PAOs can be located online, either through websites or social media. You can find a PAO that is relevant to you by speaking to your healthcare provider or searching online. You can also search through organizations like National Health Council, National Organization of Rare Disease and World Patient Alliance.
Watch the video above to learn about different ways patients and caregivers can benefit from the services of a PAO and how to get connected.
Watch the video above for more information about ways you can get involved with a PAO that is meaningful to you.
Whether you are a patient, caregiver, healthcare professional or general community member, there are a number of ways you can engage with a patient advocacy organization.
Each PAO focuses on different types of activities. You can learn about ways to get involved on their websites or social platforms. You can also reach out to a PAO directly to get involved, subscribe to their newsletters or follow them on social media.
PAO Action Week was established in 2024 as a grassroots effort from the healthcare industry and patient advocacy organizations to raise awareness and encourage engagement with PAOs during a dedicated week.
We would like to thank the entities below who are participating in our first PAO Action Week:
• Astellas Pharma (founder of PAO Action Week)
• Association for Molecular Pathology
• Black Women's Health Imperative
• Blue Faery - The Adrienne Wilson Liver Cancer Association
• Esophageal Cancer Action Network (ECAN)
• Friedreich's Ataxia Research Alliance
• Grant's Giants Pompe Nonprofit
• Kesem
• Leukemia Research Foundation
• Lung Cancer Research Foundation
• National Adrenal Diseases Foundation
• National Association For Continence
• National Coalition for Cancer Survivorship
• National Headache Foundation
• National Kidney Donation Organization
• National LGBTQI+ Cancer Network
• Society for Women's Health Research